The Nasal Gastric Tube

I believe we hit a wall with AaronMatthew's Nasal Gastric tube.

The NG tube is the thing that is taped to his face. We were taught how to insert it. It goes in his nostril and down his throat into his belly.

As you can see, AaronMatthew's face is really red and irritated.
He has been pulling out his tube pretty regularly. When he does that, he will rip the tape off in the process along with a layer of skin. The tape will also start to peel off, as seen in the photos and I will need to replace it.

I tried a couple different adhesive removers like detachol and a adhesive remover pad from Medline. I find that those are harsh on his skin too and the best remover has been some organic coconut oil.

Also, we have tried many different kinds of tape. I have found that anything made from Covidien is not really sticky and is a complete waste of money. 3M adhesives work really well. We like Tegaderm. The unfortunate thing is when AaronMatthew takes it off himself.

We have tried taping his NG tube to his forehead. It looked funny, not to mention he pulled his tube out 3 times within 10 minutes.

We have had to wrap AaronMatthew snug in blankets when we feed him to restrain his hands.

The big bummer is that he has very poor muscle tone. Because of that, he has a poor suck and does not take a bottle well. We are working on that, but it is going to take a lot of time and patience.

We made an appointment to see a surgeon to put in a Gastric Tube at my request.
That would be permanent until removed. It will be surgically placed into his stomach.