Over the Hump

I took AaronMatthew to the cardiologist this morning.

We got the okay to discontinue a medicine that was used for his junctional heart rhythm. And we also got the okay to cut the diuretic dose in half. That is very promising as his heart that once had a huge hole in it and was causing him heart failure is now repaired and performing as a normal heart. Our next appointment is going to be spaced further out since we will need to see less and less of the cardiologist.

He is smiling a lot more these days. He even laughs at times. He is having a hard time sucking on a bottle. We will need to do some speech language and occupational therapy to help him along the way and to help to get him off the nasal gastric feeding tube.

He reaches for objects and grabs them.  He follows people with his eyes and turns his head. He cannot tolerate tummy time. When I flip him on his back from his tummy, he gasps and turns purple with shallow breathing. We will work on other things like strengthening  his core muscles before putting him back on his tummy.